We do this by:

🔵 Building Community — Providing year-round educational and social events through our signature program series, Living Our BEST Lives with Duchenne, creating meaningful connections and a strong support system for families.

🔵 Educating and Connecting Families to Resources — Sharing trusted information about clinical trials; approved and investigational therapies; emerging research; Medicaid waivers; local and national support organizations; advocacy opportunities; school resources; home and vehicle modifications; adaptive equipment; accessible vehicles; camps and retreats; financial assistance; and more.

🔵 Supporting the Whole Family — Offering programs and support for individuals living with Duchenne, parents, caregivers, siblings, friends, and grandparents.

🔵 Supporting Success at School and Work — Helping families understand IEPs, 504 Plans, Indiana’s ESA program, vocational rehabilitation services, Medicaid waivers, and other supports for school and employment.

🔵 Providing Meaningful Experiences — Offering unique experiences throughout the year that help families connect, learn, and create special memories in a variety of settings.

🔵 Making Participation Possible — Providing travel assistance so families can participate in educational programs, community events, and meaningful experiences together.

🔵 Advocating for a Better Future — Serving as a trusted voice for the Duchenne community and collaborating with policymakers, researchers, healthcare leaders, advocacy organizations, and industry partners to improve systems of care, expand access to treatments and resources, and enhance both quality of life and life expectancy for people living with Duchenne.

At Best Day Ever Foundation, we believe we truly are BEST TOGETHER, and that belief is woven into every program, every partnership, every act of support, and every BEST DAY EVER we help create.

Best Day Ever Foundation is a registered non-profit 501(c)(3). EIN #81-1358629

We Are Grateful for Those Who Help Make Our BEST Days Possible:

A NOTE FROM OUR FOUNDER...

Best Day Ever Foundation was "born" in my heart a few years after my son Jordan was diagnosed with Duchenne Muscular Dystrophy. A few years into our journey, I realized I had immersed myself so deeply into trying to find the best treatments, the best doctors and scientists in the field, the best possible care, etc. and I was always looking for ways to create the best experiences for my son. But then I realized that other members of my very own family were sacrificing, hurting and needing support too. My entire family inspired the formation of the Best Day Ever Foundation. I do still care very much about raising awareness and trying to find the best treatments and hopefully one day a cure for Jordan and others living with DMD. In the meantime though, our family is trying to just LIVE one best day ever at a time. It has become my own personal passion to help other families do the same. Thank you for joining us on this journey of hope, love and life. -Laura McLinn