We do this is by:

🔵 Building Community — Providing year-round educational and social events through Living Our BEST Lives with Duchenne, creating meaningful connections and a strong support system for families.

🔵 Connecting Families to Resources — Helping families access local, state, and national resources for Medicaid waivers, adaptive equipment, accessible vehicles, home modifications, camps, financial assistance, and more.

🔵 Educating & Empowering — Sharing trusted information about clinical trials, approved and investigational therapies, emerging research, Medicacid waivers, local resources, advocacy opportunities, school resources, home & vehicle modifications and more.

🔵 Supporting the Whole Family — Offering programs for individuals living with Duchenne, parents, caregivers, siblings, and grandparents—including caregiver support, Create & Connect art experiences, and digital art classes.

🔵 Navigating School & Services — Helping families understand IEPs, 504 Plans, Indiana's ESA program, Medicaid waivers, and other educational and community supports.

🔵 Making Participation Possible — Providing travel assistance so families can participate in educational programs, community events, and meaningful experiences together.

🔵 Advocating for a Better Future — Working with policymakers, researchers, healthcare leaders, advocacy organizations, and industry partners to improve care, expand access to treatments and resources, and improve both quality of life and life expectancy for people living with Duchenne.

🔵 Serving as a trusted voice for the Duchenne community — Collaborating with policymakers, healthcare leaders, other advocacy organizations, researchers, and industry partners to improve systems of care, expand access to resources and therapies, and shape the best future possible for individuals living with Duchenne and other complex medical conditions.

At Best Day Ever Foundation, we believe we truly are BEST TOGETHER, and that belief is woven into every program, every partnership, every act of support, and every BEST DAY EVER we help create.

We Are Grateful for Those Who Help Make Our BEST Days Possible:

Best Day Ever Foundation is a registered non-profit 501(c)(3) and all donations are tax-deductible. EIN #81-1358629

A NOTE FROM OUR FOUNDER...

Best Day Ever Foundation was "born" in my heart a few years after my son Jordan was diagnosed with Duchenne Muscular Dystrophy. A few years into our journey, I realized I had immersed myself so deeply into trying to find the best treatments, the best doctors and scientists in the field, the best possible care, etc. and I was always looking for ways to create the best experiences for my son. But then I realized that other members of my very own family were sacrificing, hurting and needing support too. My entire family inspired the formation of the Best Day Ever Foundation. I do still care very much about raising awareness and trying to find the best treatments and hopefully one day a cure for Jordan and others living with DMD. In the meantime though, our family is trying to just LIVE one best day ever at a time. It has become my own personal passion to help other families do the same. Thank you for joining us on this journey of hope, love and life. -Laura McLinn