Best Day Ever Foundation’s mission is simple. We support families living with Duchenne muscular dystrophy and other complex medical conditions by helping them live their best lives possible — one BEST DAY EVER at a time!

Some of the ways we do this is by:

🔵 Providing year-round educational and social events through our signature program—Living Our BEST Lives with Duchenne—that help families navigate the Duchenne journey, build meaningful connections, and develop a strong local support system.

🔵 Connecting families with local, state, and national resources, services, and organizations that can help meet their unique needs.

🔵 Empowering families with information about clinical trials, approved therapies, investigational treatments, and emerging research.

🔵 Providing opportunities throughout the year for families to engage with pharmaceutical companies, researchers, and healthcare professionals to gain firsthand knowledge about advances in Duchenne research, treatment development, and patient care.

🔵 Helping families understand educational supports, including IEPs, 504 Plans, Indiana's Educational Scholarship Account (ESA), and other school resources.

🔵 Providing support to help families navigate Indiana's Medicaid waiver system, understand available services, complete applications, troubleshoot challenges, and connect with additional resources while they wait for critical supports.

🔵 Supporting caregivers through dedicated programs, peer connections, and opportunities for self-care and encouragement.

🔵 Providing programs and opportunities specifically designed for siblings, grandparents, parents and other family members, recognizing that Duchenne impacts the entire family.

🔵 Providing art experiences through our “Create & Connect” program that foster creativity, reduce isolation, encourage self-expression, and bring caregivers, siblings, and individuals living with Duchenne together through meaningful artistic experiences.

🔵 Providing free digital art classes for individuals living with Duchenne and their siblings that foster creativity, encourage self-expression, teach how to use Procreate as a tool in the school setting to make note-taking easier, strengthen relationships, and build lasting connections.

🔵 Providing travel support that enables families to attend educational programs, social events, and other mission-aligned activities that strengthen connections and create meaningful experiences together.

🔵 Connecting families with resources for accessible vehicles, home modifications, adaptive equipment, camps, retreats, financial assistance, and other supports that enhance quality of life.

🔵 Advocating for policies, research, and access to treatments that improve both quality of life and life expectancy for individuals living with Duchenne.

🔵 Serving as a trusted voice for the Duchenne community by collaborating with policymakers, healthcare leaders, advocacy organizations, researchers, and industry partners to improve systems of care, expand access to resources and therapies, and shape a brighter future for individuals living with Duchenne.

At Best Day Ever Foundation, we know that hope grows stronger when it is shared. We are truly BEST TOGETHER, and that belief is woven into every program, every partnership, every act of support, and every BEST DAY EVER we create.

Best Day Ever Foundation is a registered non-profit 501(c)(3) and all donations are tax-deductible. EIN #81-1358629

A NOTE FROM OUR FOUNDER...

Best Day Ever Foundation was "born" in my heart a few years after my son Jordan was diagnosed with Duchenne Muscular Dystrophy. A few years into our journey, I realized I had immersed myself so deeply into trying to find the best treatments, the best doctors and scientists in the field, the best possible care, etc. and I was always looking for ways to create the best experiences for my son. But then I realized that other members of my very own family were sacrificing, hurting and needing support too. My entire family inspired the formation of the Best Day Ever Foundation. I do still care very much about raising awareness and trying to find the best treatments and hopefully one day a cure for Jordan and others living with DMD. In the meantime though, our family is trying to just LIVE one best day ever at a time. It has become my own personal passion to help other families do the same. Thank you for joining us on this journey of hope, love and life. -Laura McLinn

We are grateful for our DMD industry and local community partners and sponsors! 

WE ARE BEST TOGETHER!