Back to All Events

Living Our BEST Lives with Duchenne - Early Weekday Coffee and Connecting!

Our July program will be an early morning one! Join us by Zoom from the comfort of home or wherever you are! Bring your favorite morning beverage in your Best Day Ever mug to talk about anything and everything Duchenne: Medicaid, Medicaid waivers, home health services, IEPs for school, home modifications, accessible vehicle resources, vocational rehab, attendant care, respite care, special needs trusts, how to find information about approved and investigational therapies for Duchenne, information about other organizations that provide valuable resources to families, and ANY other topics caregivers want to discuss!

We are BEST together and this session is all about parents and caregivers sharing, asking questions and learning from each other. There will be no sponsors or pharmaceutical employees at this particular meeting.

WE HAVE A SPECIAL SPONSOR FOR THIS MONTH’S EVENT WHO KNOWS HOW VALUABLE THESE SHARING SESSIONS ARE AND THEIR SPONSORSHIP IS ALLOWING US TO SEND EVERY PARENT AND/OR CAREGIVER WHO PARTICPATES IN THIS MEETING A $50 STARBUCKS OR AMAZON GIFT CARD!

THIS EVENT IS NOW CLOSED FOR NEW REGISTRATIONS.