Living Our BEST Lives with Duchenne - Mother's Day Brunch 2026
May
9
10:00 AM10:00

Living Our BEST Lives with Duchenne - Mother's Day Brunch 2026

Join us for a special gathering on Mother’s Day Weekend created just for the incredible women who love and support someone living with Duchenne. This brunch is for the moms, aunts, grandmas, sisters, and dear friends who walk alongside our boys and young men every day.

The brunch will take place at a private location in downtown Indianapolis. Come ready to learn, share, connect, and simply enjoy a beautiful morning together with other women who truly understand the journey. It will be a time to relax, laugh, encourage one another, and celebrate Mother’s Day Weekend surrounded by a supportive community.

RSVP is required. Location details will be shared after registration. 🌷




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Caregiver & Siblings Hike & Lunch During Indiana's MDA Summer Camp Week!
Jul
1
9:00 AM09:00

Caregiver & Siblings Hike & Lunch During Indiana's MDA Summer Camp Week!

Caregiver & Siblings Hike & Lunch – During MDA Summer Camp Week

Join other caregivers and siblings for a refreshing hike and lunch together during the week of MDA Summer Camp, while the boys are away having their best week ever. This will be a wonderful opportunity to spend time outdoors, connect with others who understand the journey, and enjoy meaningful conversation and encouragement.

Details will be finalized once we hear from families who are interested.


Please complete the form below to express your interest, and someone from our team will reach out with additional information and help coordinate plans.

We hope you can join us for this special time of connection, fresh air, and community.

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2026 Annual BEST Friendsgiving EVER - Save the Date!
Nov
21
4:00 PM16:00

2026 Annual BEST Friendsgiving EVER - Save the Date!

  • Union Hall - Indianapolis Professional Firefighters Local 416 (map)
  • Google Calendar ICS

Save the Date for our Annual Best Friendsgiving Ever!

Join us for one of our favorite gatherings of the year — Best Friendsgiving Ever, part of our Living Our BEST Lives with Duchenne monthly program series.

This special event will take place at the Firefighters Union Hall in downtown Indianapolis and is designed to bring families together for an evening of connection, encouragement, and fun.

The best part? No cooking, no preparation, and no stress.
Everything is free and included! Just bring your family and come ready to enjoy a wonderful evening with others who understand the Duchenne journey.

The venue features a large main room for dinner and sponsor booths, along with an adjacent activity room filled with fun for kids. Families will have opportunities to meet with industry sponsors to learn more about FDA-approved therapies for Duchenne muscular dystrophy and ongoing clinical trials, as well as connect with other nonprofits that support families living with Duchenne and explore helpful local resources. There will also be games, crafts, and activities for kids and siblings to enjoy throughout the evening.

We hope you will join us for this joyful evening of community, learning, and celebration as we gather together for Best Friendsgiving Ever.

A REGISTRATION LINK WILL BE POSTED CLOSER TO THE DATE!

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Zoom for Newly Diagnosed Families in Indiana
Apr
18
8:00 AM08:00

Zoom for Newly Diagnosed Families in Indiana

Join our founder to learn more about valuable resources and how to start building a strong local support network close to home.


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Caregiver Luncheon - Downtown Indianapolis
Apr
14
12:30 PM12:30

Caregiver Luncheon - Downtown Indianapolis

This free luncheon is designed for caregivers who want to connect, build meaningful friendships, and learn from one another in a supportive environment. The gathering is part of our ongoing program series, Living Our BEST Lives with Duchenne, created to bring families together for encouragement, education, and community.

Whether your loved one is living with Duchenne, Becker, or another complex medical condition, we warmly invite you to join us for an afternoon of connection, conversation, and shared experiences.

RSVP is required so we can plan appropriately for seating and lunch.



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Sisters of Duchenne – Virtual Connection & Conversation 💛
Apr
7
8:15 PM20:15

Sisters of Duchenne – Virtual Connection & Conversation 💛

Sisters of Duchenne – Virtual Connection & Conversation 💛

Join us for a special Sisters of Duchenne Zoom gathering - a space created just for sisters of individuals living with Duchenne.

Being a sister in the Duchenne community is a unique and deeply meaningful journey. It can be filled with love, strength, responsibility, and sometimes emotions that are hard to put into words. This call is an opportunity to connect with others who truly understand.

During our time together, we will:
💛 Build meaningful connections with other sisters
💛 Share experiences, thoughts, and feelings in a supportive space
💛 Encourage one another through honest conversation
💛 Brainstorm ways the Best Day Ever Foundation can better support you on your personal journey

Whether you feel like sharing or simply listening, you are welcome just as you are. Our hope is that every sister leaves feeling seen, heard, and supported.

You are not alone in this journey and we would be honored to spend this time together.

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Caregiver Luncheon - Downtown Indianapolis
Mar
30
12:30 PM12:30

Caregiver Luncheon - Downtown Indianapolis

This free luncheon is designed for caregivers who want to connect, build meaningful friendships, and learn from one another in a supportive environment. The gathering is part of our ongoing program series, Living Our BEST Lives with Duchenne, created to bring families together for encouragement, education, and community.

Whether your loved one is living with Duchenne, Becker, or another complex medical condition, we warmly invite you to join us for an afternoon of connection, conversation, and shared experiences.

RSVP is required so we can plan appropriately for seating and lunch.

REGISTRATION IS NOW CLOSED.


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🎨 Free Digital Art Classes – For Individuals Living with Duchenne & Their Siblings - Spring 2026
Mar
14
to Mar 28

🎨 Free Digital Art Classes – For Individuals Living with Duchenne & Their Siblings - Spring 2026

  • Google Calendar ICS

Join us in downtown Indianapolis for a fun and creative digital art experience! These free classes are designed especially for individuals living with Duchenne muscular dystrophy and their siblings, offering a chance to explore creativity, learn new skills, and spend time together in a welcoming environment.

All materials and equipment will be provided, so just come ready to create and have fun!

This event is part of our ongoing program series, Living Our BEST Lives with Duchenne, which brings families together for meaningful experiences, connection, and community.

We will be offering multiple class sessions during a two-week period and want to schedule them at times that work best for our families.


Please complete the form below to express your interest, and someone from our team will reach out to help coordinate dates and times that work best for you.

We look forward to creating something beautiful together! ✨

REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Caregiver Luncheon - Downtown Indy
Feb
25
12:30 PM12:30

Caregiver Luncheon - Downtown Indy

Join us for a free caregiver luncheon focused on connection, community, and shared support. As part of our Living Our BEST Lives with Duchenne series, this gathering brings caregivers together to build friendships, share valuable resources, and learn from one another. Caregivers supporting loved ones with Duchenne, Becker, or any complex medical condition are welcome.

REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Indiana Medicaid Waivers - Caregiver Zoom
Feb
20
9:15 AM09:15

Indiana Medicaid Waivers - Caregiver Zoom

Join our founder and other families living with Duchenne muscular dystrophy right here in Indiana as we come together to discuss Indiana Medicaid Waivers. Whether you currently have a waiver, are on the waitlist, or simply want to learn more — you are welcome. We know we truly are BEST TOGETHER, and we learn so much from one another. Please come prepared to share your own experiences and to learn from others!

This meeting is part of our ongoing educational and social program series, Living Our Best Lives with Duchenne.


REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Free Digital Art Class
Jan
24
10:00 AM10:00

Free Digital Art Class

  • Best Day Ever - South Location (map)
  • Google Calendar ICS

Our digital art classes are for individuals living with Duchenne and/or their siblings! This class will be held in downtown Indy and all materials will be provided. This event is part of our ongoing program series - Living Our BEST Lives With Duchenne!

***CLASS CANCELED DUE TO SNOW***

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Caregiver Luncheon - Downtown Indy
Jan
22
12:30 PM12:30

Caregiver Luncheon - Downtown Indy

Join us for a free caregiver luncheon focused on connection, community, and shared support. As part of our Living Our BEST Lives with Duchenne series, this gathering brings caregivers together to build friendships, share valuable resources, and learn from one another. Caregivers supporting loved ones with Duchenne, Becker, or any complex medical condition are welcome.

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Best Friendsgiving Ever 2025!
Nov
22
4:00 PM16:00

Best Friendsgiving Ever 2025!

  • Indianapolis Professional Firefighters Union Hall (map)
  • Google Calendar ICS

This event is open to all families living with Duchenne muscular dystrophy! Bring the siblings, the aunts, the uncles, the grandparents and anyone else in your support system who would like to join us! This will be a fun, educational and social event with great food, drinks, activities, games and time to reflect on all the things we have to be grateful for this year!

Every individual living with Duchenne (and siblings) will get to choose a special advent calendar to take home and there will be other fun surprises for families too!

Travel scholarships are available! We do not want any obstacles keeping families from being able to attend!

A resource fair, showcasing information from our sponsors and vendors, will also be available!

REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Create & Connect - Digital Art Class
Oct
7
6:00 PM18:00

Create & Connect - Digital Art Class

Our free digital art classes are designed for individuals living with Duchenne and their siblings!

Location: Southside Indy
Materials: iPads and Apple Pencils provided (or bring your own)

With guidance from our instructor, students will explore ProCreate through mini lessons tailored to their interests and skill levels. Each participant will also have the opportunity to work on personal projects in a fun, creative, and supportive environment.

This event is part of our ongoing program series: Living Our BEST Lives With Duchenne!

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Hydroponics Gardening & Nutrition Dinner Event
Sep
6
5:00 PM17:00

Hydroponics Gardening & Nutrition Dinner Event

  • Indianapolis Professional Firefighters, IAFF Local 416 (map)
  • Google Calendar ICS

Join us for an evening focused on nutrition, community, and healthy living with Duchenne.

What to Expect:

  • An interactive presentation from a registered dietitian on dietary best practices for Duchenne, including the importance of a heart-healthy diet and other key considerations for individuals living with Duchenne.

  • A delicious, thoughtfully prepared dinner crafted by our caterer to incorporate as many Duchenne-specific dietary recommendations as possible.

  • An opportunity for families to connect, share, and strengthen their support systems.

  • A free Aerogarden (hydroponics garden growing system) for each household to take home to grow the same herbs and veggies used in our dinner and discussed in our presentation!

This event is part of our ongoing monthly educational series: Living Our Best Lives with Duchenne. These events are free for families, and we encourage you to invite anyone in your family or support system to join us. WE ARE BEST TOGETHER!

REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Educational Zoom - School Resources
Jul
22
9:00 AM09:00

Educational Zoom - School Resources

This Zoom meeting is for anyone who wants to learn more about resources for public, private, and homeschool models that can help individuals living with Duchenne and other complex medical conditions have the BEST educational experience possible. IEPs, 504s, Indiana School Choice and ESA programs will all be discussed. If your loved one has an IEP, ISP ESASP or 504 plan, please have it handy! Come to learn and come to share!

REGISTRATION HAS CLOSED FOR THIS EVENT.

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BEST 2025 DMD Conference Takeaways with our Founder - Laura McLinn
Jun
28
8:00 AM08:00

BEST 2025 DMD Conference Takeaways with our Founder - Laura McLinn

Join us for a Zoom on Saturday, June 28, 2025 to hear from our founder, Laura McLinn. Laura recently attended three national conferences focused on Duchenne muscular dystrophy and will share her BEST takeaways. Can’t make this Zoom? Let us know and we can set up an additional time to meet/share!

REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Digital Art Class
Jun
26
1:00 PM13:00

Digital Art Class

Our digital art classes are for individuals living with Duchenne and/or their siblings! This class will be held in downtown Indy and all materials will be provided. This event is part of our ongoing program series - Living Our BEST Lives With Duchenne!

REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Caregiver Luncheon - Downtown Indianapolis
Jun
26
1:00 PM13:00

Caregiver Luncheon - Downtown Indianapolis

This free luncheon is for caregivers who want to connect, build friendships and learn from each other. This event is part of our ongoing program series - Living our BEST Lives with Duchenne. Whether your loved one is living with Duchenne, Becker, or any other complex medical condition, we invite you to join us for this luncheon!

REGISTRATION IS NOW CLOSED FOR THIS EVENT.

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Free Digital Art Class
Jun
7
10:00 AM10:00

Free Digital Art Class

Our digital art classes are for individuals living with Duchenne and/or their siblings! This class will be held in downtown Indy and all materials will be provided. This event is part of our ongoing program series - Living Our BEST Lives With Duchenne!

REGISTRATION IS CLOSED FOR THIS EVENT.

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A Personal Journey With Gene Therapy for Duchenne
May
7
8:30 PM20:30

A Personal Journey With Gene Therapy for Duchenne

This private Zoom event is open to any family in Indiana living with Duchenne. Please join us to hear the personal story of a fellow Indiana family whose child received gene therapy recently. They will talk about their personal experience and leave time for Q & A. This event is only open to parents, guardians, grandparents, siblings or individuals living with Duchenne. If you are not registered with Best Day Ever Foundation, you may RSVP for this event but someone from our team may reach out to get you officially registered.

REGISTRATION IS CLOSED FOR THIS EVENT.

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Zoom for Newly Diagnosed Families
May
3
7:00 AM07:00

Zoom for Newly Diagnosed Families

Join our founder and some other caregivers who have been navigating the DMD journey for a few years to learn more about valuable resources and to start building a local support system. Grab your favorite morning beverage and let us know if we can send you a Best Day Ever mug too!

REGISTRATION IS CLOSED FOR THIS EVENT.

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Caregiver Luncheon - Downtown Indianapolis
Apr
24
1:00 PM13:00

Caregiver Luncheon - Downtown Indianapolis

This free luncheon is for caregivers who want to connect, build friendships and learn from each other. This event is part of our ongoing program series - Living our BEST Lives with Duchenne. Whether your loved one is living with Duchenne, Becker, or any other complex medical condition, we invite you to join us for this luncheon!

REGISTRATION IS CLOSED FOR THIS EVENT.

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Zoom for Newly Diagnosed Families
Apr
12
9:00 AM09:00

Zoom for Newly Diagnosed Families

Join our founder and some other caregivers who have been navigating the DMD journey for a few years to learn more about valuable resources and to start building a local support system. Grab your favorite morning beverage and let us know if we can send you a Best Day Ever mug too!

REGISTRATION IS CLOSED FOR THIS EVENT.

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Zoom for Newly Diagnosed Families
Mar
15
9:00 AM09:00

Zoom for Newly Diagnosed Families

Join our founder and some other caregivers who have been navigating the DMD journey for a few years now to learn more about valuable resources and to start building a local support system. Grab your favorite morning beverage and let us know if we can send you a Best Day Ever mug too!

REGISTRATION IS CLOSED FOR THIS EVENT.

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